Billy Porter reveals he’s HIV positive: ‘I have lived with that shame in silence’

Billy Porter has revealed that he was diagnosed as HIV+ 14 years ago. Billy gave an emotional interview to The Hollywood Reporter in which he chronicled his journey from diagnosis to admission. It’s powerful because Billy is powerful, and you feel that in every part of his story. He talked about his trauma, which he has been working on eleasing during quarantine. The interview is in Billy’s own words, and I strongly recommend reading the whole thing. I found myself pulling through each paragraph with Billy. He’s such a force in everything he does. But the best part is Billy letting go of the shame he has felt since he found out about his diagnosis in 2007.

Having lived through the plague, my question was always, “Why was I spared? Why am I living?”

Well, I’m living so that I can tell the story. There’s a whole generation that was here, and I stand on their shoulders. I can be who I am in this space, at this time, because of the legacy that they left for me. So it’s time to put my big boy pants on and talk.

I was the generation that was supposed to know better, and it happened anyway. It was 2007, the worst year of my life. I was on the precipice of obscurity for about a decade or so, but 2007 was the worst of it. By February, I had been diagnosed with Type 2 diabetes. By March, I signed bankruptcy papers. And by June, I was diagnosed HIV-positive. The shame of that time compounded with the shame that had already [accumulated] in my life silenced me, and I have lived with that shame in silence for 14 years. HIV-positive, where I come from, growing up in the Pentecostal church with a very religious family, is God’s punishment.

For a long time, everybody who needed to know, knew — except for my mother. I was trying to have a life and a career, and I wasn’t certain I could if the wrong people knew. It would just be another way for people to discriminate against me in an already discriminatory profession. So I tried to think about it as little as I could. I tried to block it out. But quarantine has taught me a lot. Everybody was required to sit down and shut the fuck up.

There’s happiness, yes; there’s surface joy, but there was also a feeling of dread, all day, every day. It wasn’t a fear that [my status] was going to come out or that somebody was going to expose me; it was just the shame that it had happened in the first place. And as a Black person, particularly a Black man on this planet, you have to be perfect or you will get killed. But look at me. Yes, I am the statistic, but I’ve transcended it. This is what HIV-positive looks like now. I’m going to die from something else before I die from that. My T-cell levels are twice yours because of this medication. I go to the doctor now — as a Black, 51-year-old man, I go to the doctor every three months. That doesn’t happen in my community. We don’t trust doctors. But I go to the doctor, and I know what’s going on in my body. I’m the healthiest I’ve been in my entire life. So it’s time to let all that go and tell a different story. There’s no more stigma — let’s be done with that. It’s time. I’ve been living it and being in the shame of it for long enough. And I’m sure this will follow me. I’m sure this is going to be the first thing everybody says, “HIV-positive blah, blah, blah.” OK. Whatever. It’s not the only thing I am. I’m so much more than that diagnosis. And if you don’t want to work with me because of my status, you’re not worthy of me.

[The Hollywood Reporter]

There is much more I wanted to put into the excerpt above. The process Billy went through with his mother was extraordinary. He spoke about the church aspect but in the interview, he explained the reason he didn’t tell his mother was because he felt guilty for the shame put on her by those in her church for his homosexuality (Billy came out at the age of 16). He felt if he told her about being HIV+, she would have to live with everyone thrusting “I told you so” upon her in judgement and it only added to his guilt. Billy’s original plan was to admit his HIV+ status after she passed, but she is thriving at the Actors Fund Nursing Home so he told her before going public. She was loving, accepting and told him he never should have had to carry that secret for all those years. Billy said it felt like his every dream had come true.

In another part not mentioned above, Billy talked about how his roles allowed him to process some of his trauma. His role of Lola in Kinky Boots was about forgiving Lola’s father and Billy felt it allowed him to practice forgiving his deceased father and stepfather every time he stepped into that role. He saw the same opportunity in Pray Tell, his groundbreaking character on Pose, who happens to be HIV+, even though no one on the show knew Billy’s diagnosis. Billy felt Pray Tell allowed him to speak about his condition and fears until he was ready to admit it to the world himself. I’ve seen AIDS/HIV from the same timeframe as Billy. Obviously, I haven’t faced it from the same prejudices or scrutiny, but I watched the first victims die from it. I remember the “God’s punishment” folks. I remember waiting for those test results, when a + was a death sentence. A lot has changed, thank goodness, but Billy’s right, the judgment still lingers. It shouldn’t, but when has that ever stopped it. Good for him for braving the world on this. And as he said, if anyone can’t see how incredible Billy is, they’re not worthy of him.

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Photos credit: Avalon Red and via Instagram

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26 Responses to “Billy Porter reveals he’s HIV positive: ‘I have lived with that shame in silence’”

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  1. Becks1 says:

    This was so powerful and moving to read.

    Even in 2007 (even today) there is still so much stigma attached to being HIV positive. I remember the 80s and 90s when it was a death sentence, and along with that there was so much fear and ignorance. It’s gotten better but I do think there is still a large sense of “well what did you do to get it?” “How is this your fault”? especially for a gay man. I think even today it takes a lot of strength to be so open about it.

  2. Emily says:

    Billy Porter is a gift, a force, a joy.

  3. TQ says:

    Love, love, love Billy Porter. I am so glad he is speaking his truth. F*ck shame and bigots.

    • Otaku fairy says:

      This. It would be a good idea to toss that stigma right into the ‘behaviors that need to be left in previous decades’ pile that’s being looked at now. His mom is right. He shouldn’t have had to suffer in silence out of fear of the bigots throwing it up in his mother’s face. Nobody should. The other scary thing is that there have been people who didn’t get the medical help they needed because of the stigma aroud HIV. And there are extra layers to that stigma when the person isn’t straight, white, or male.

  4. Neners says:

    This interview moved me to tears when I read it yesterday. Saying that Billy Porter is incredible feels woefully inadequate.

  5. Calibration says:

    So pwoweful. I love Billy. That’s all I got

  6. FHMom says:

    I hate that there is stigma attached to any health issues, whether it is HIV, mental health, etc. Dealing with a serious health issue is difficult enough without fear of wondering what people are going to think. Thank you for sharing your story, Billy. You are doing a good thing.

    • Otaku fairy says:

      Agreed. People can get so caught up in respectability politics and the thrill of telling Sinners “I told you so” that they let themselves become sadistic. STDs, a mental health issue or crisis, violent crimes- basically anything traumatic or that involves the ‘sinners’ suffering become some kind of victory dance. It’s not healthy, it’s not kind, it definitely doesn’t scream ‘moral high ground’, and is very damaging in the long run. Both to the marginalized people they consider beneath them, and other people exposed to them.

  7. Andrew’s Nemesis says:

    What a brave and inspiring man he is. I actually hopes he reads the responses to this piece and knows how much we all admire him, the honesty with which he has shared his story, and that his vulnerability actually comes from a place of enormous resilience and strength. Just so admirable.

  8. LaUnicaAngelina says:

    He’s so f-cking fabulous and bravo for sharing his story. I volunteered for a local AIDS foundation in the early aughts while in college. It was a great place with wonderful staff but I remember the stigma/secrecy surrounding testing and status.

  9. CarnivalBaby says:

    Beautifully written @Hecate. I will read this story today.

  10. J ferber says:

    Billy is a role model and hero. I just love him.

  11. Stef says:

    So proud of him for telling his truth and likely helping so many others do the same. I can’t even imagine what the shame must of felt like for him all these years and I want to both smile and cry as I read his elegant words.

    He’s amazing on Pose, one of my favourite shows these days, and it’s so good to hear that his role likely has helped him come to terms with his diagnosis and now lift the shade of shame and be free. He’s so right about the stigma, it needs to end. He’s such an incredible talent and I’m so glad he’s getting the accolades he deserves with awards and recognition, especially for Pose.

    When I was a kid, my mom showed Arabian horses and our main trainer was gay, he was my first crush. He later died of AIDS, his partner too, and it was at a time in the 80’s when the world was still trying to understand the disease. Modern medicine has come so far!

  12. Nicole says:

    My uncle died of AIDS in the early ’90s. F*ck the bigots! It was an incredibly hard time for my grandmother and my uncle’s partner. I don’t think either ever recovered from the loss. I will always advocate for those living with HIV/AIDs. Besides, it’s nobody’s business but their own.

  13. nicegirl says:

    Love Billy.

    Thank you for this piece, H.

  14. KNy says:

    He’s so amazing and I’m so glad he’s doing well. I follow him on IG and he’s just purely wonderful. The diagnosis of HIV is so different now than it was in the 90s (when I first heard whispers about it as a child). I feel like HIV used to become the identity placed on a person with it, and now it’s another diagnosis. I keep forgetting Jonathan Van Ness has HIV – it’s just not what I think about when I see him on social media or watch Queer Eye. I’m pretty sure it will be the same with Billy. Of course we have such a long way to go, and the stigma is still there. But I’m glad that there has been change.

  15. T says:

    I think Billy is an amazing individual. Sharing his truth and experiences is not his obligation, but he does so in order to bring light to subjects the world needs to hear about and with hope that it helps someone else feel less alone.

  16. Jaded says:

    OK I’m all teared up now…this person, this wonderful, brave, humble, talented and loving person. We need more Billy Porters in this world.

  17. ennie says:

    HE IS SO BRAVE, AND SO DESERVING OF PRAISE!

  18. Veronica S. says:

    We’ve really done a disservice to younger LGBT+ people not emphasizing just how bad the HIV epidemic was here in the States and how it absolutely devastated queer communities. A lot of the movement and the rhetoric around it has been noticeably sanitized since gay marriage became legalized in the 2010s, which is not something I think is a particularly a good thing since a certain level of vigilance is always necessary for minority rights in a society. It’s always much easier for them to be taken away than people think it is. Conservative waves hit hard and fast, and we’re definitely seeing one right now.

    I’m glad he feels comfortable coming out and speaking for this, especially since he pointed out about the distrust minority classes have of medicine. LGBT+ people often weigh whether to put that kind of information on their record, and POC within the LGBT+ community are notoriously wary of the medical community – for good reason. The stigma around HIV is nowhere what it was in previous decades, and it’s mostly survivable with the drug regiments, but there’s definitely still plenty of institutionalized prejudices against the infected. It’s important to have somebody with his profile speaking for the benefits of getting care.

  19. Dierski says:

    His voice and strength in this interview is incredible and so powerful- as if we needed more reason to love Billy! I appreciate him speaking his truth so much, and hope his influence is felt far and wide. Anything to make it easier for future generations, and reducing stigma is just so important.

    Also, his FASHION. Good lord, wonderful as always! I never tire of seeing photos of him.

  20. lascivious chicken says:

    Powerful and beautiful. I wish we could drop the stigma for other illnesses as well—herpes comes to mind pretty quickly.

  21. Roo says:

    The excerpt brought me to tears. No one should live with that burden, that sense of shame, and I’m so happy for him that he has released that burden. I’m glad his mother gave him love and support when he told her, and I hope his life gets more fulfilling and beautiful everyday.

  22. Ashley says:

    I once dated a guy in France who was HIV positive. He had a complete breakdown when he told me. I didn’t see the big deal because I had lived through American culture with all of the stories and that came from Real World, Gia, Princess Diana, decades of a different message. Being 30 it didn’t faze me. We never got physical but I think it was around date number 2 when he told me why we couldn’t continue to date. I think I was the first person he ever told. Stigma is still very much alive. Maybe not in America but this was 4 years ago in Paris. And he clearly felt some type of way. I remember him telling me good looking guys (he looked like Liam Hemsworth’s twin) from middle class families in France don’t get it. And I remember thinking my American culture taught me that anyone can get it.